Images Published by Cancer Patients in Social Media and Their Reception: A Systematic Review
Main Article Content
This paper presents a systematic review of the discourses that emerge from the study of cancer images posted by patients and caregivers on Instagram, Imgur, Pinterest, Twitter and Facebook. It presents the types of images that posters use to visualise cancer and how they are perceived by viewers. Results indicate that three factors affect visibility and engagement: (a) the framing, (b) the purpose, and (c) the emotions portrayed. They also show that viewers prefer images that (a) show the patient improving their condition through treatment, (b) tell a personal story and (c) take on an optimistic tone. This type of image reflects the common idea of the cancer patient as a survivor, which is particularly visible in breast cancer posts. For patients faced with uncertainty, fear or frustration, the standardisation of survivorship images may challenge identity-formation and create a sense of isolation. However, we also find that patients who use photographs to express negative emotions (such as sadness or frustration) are met with emotional support from viewers. Our findings show that, beyond virality and standardised discourses, visual social media and photography can provide a positive venue for the communication of more diverse cancer experiences from patients and caregivers.
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Attai, D. J., Cowher, M. S., Al-Hamadani, M., Schoger, J. M., Staley, A. C., & Landercasper, J. (2015). Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey. Journal of Medical Internet Research, 17(7), e4721. https://doi.org/10.2196/jmir.4721
Banerjee, S. C., D’Agostino, T. A., Gordon, M. L., & Hay, J. L. (2018). “It’s Not JUST Skin Cancer”: Understanding Their Cancer Experience From Melanoma Survivor Narratives Shared Online. Health Communication, 33(2), 188–201. https://doi.org/10.1080/10410236.2016.1250707
Banerjee, S. C., Rodríguez, V. M., Greene, K., & Hay, J. L. (2019). Trending on Pinterest: An examination of pins about skin tanning. Translational Behavioral Medicine, 9(4), 737–748. https://doi.org/10.1093/tbm/iby036
Beaudoin, C. E., & Tao, C.-C. (2007). Benefiting from social capital in online support groups: An empirical study of cancer patients. Cyberpsychology & Behavior: The Impact of the Internet, Multimedia and Virtual Reality on Behavior and Society, 10(4), 587–590. https://doi.org/10.1089/cpb.2007.9986
Bell, K. (2014). The breast-cancer-ization of cancer survivorship: Implications for experiences of the disease. Social Science & Medicine, 110, 56–63. https://doi.org/10.1016/j.socscimed.2014.03.031
Bender, J. L., Katz, J., Ferris, L. E., & Jadad, A. R. (2013). What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities. Patient Education and Counseling, 93(3), 472–479. https://doi.org/10.1016/j.pec.2013.07.009
Brinker, T. J., Schadendorf, D., Klode, J., Cosgarea, I., Rösch, A., Jansen, P., Stoffels, I., & Izar, B. (2017). Photoaging Mobile Apps as a Novel Opportunity for Melanoma Prevention: Pilot Study. JMIR MHealth and UHealth, 5(7), e101. https://doi.org/10.2196/mhealth.8231
Cherian, R., Le, G., Whall, J., Gomez, S., & Sarkar, U. (2020). Content shared on social media for national cancer survivors day 2018. PLoS ONE, 15(1). https://doi.org/10.1371/journal.pone.0226194
Cho, H., Silver, N., Na, K., Adams, D., Luong, K. T., & Song, C. (2018). Visual Cancer Communication on Social Media: An Examination of Content and Effects of #Melanomasucks. Journal of Medical Internet Research, 20(9), e10501. https://doi.org/10.2196/10501
Chou, W.-Y. S., Trivedi, N., Peterson, E., Gaysynsky, A., Krakow, M., & Vraga, E. (2020). How do social media users process cancer prevention messages on Facebook? An eye-tracking study. Patient Education and Counseling, 103(6), 1161–1167. https://doi.org/10.1016/j.pec.2020.01.013
Delgado-López, P. D., & Corrales-García, E. M. (2018). Influence of internet and social media in the promotion of alternative oncology, cancer quackery, and the predatory publishing phenomenon. In Cur?us (Vol. 10, Issue 5). CUREUS INC. https://doi.org/10.7759/cureus.2617
Döbrössy, B., Girasek, E., Susánszky, A., Koncz, Z., Gy?rffy, Z., & Bognár, V. K. (2020). “Clicks, likes, shares and comments” a systematic review of breast cancer screening discourse in social media. PloS One, 15(4), e0231422. https://doi.org/10.1371/journal.pone.0231422
Falisi, A. L., Wiseman, K. P., Gaysynsky, A., Scheideler, J. K., Ramin, D. A., & Chou, W.-Y. S. (2017). Social media for breast cancer survivors: A literature review. Journal of Cancer Survivorship, 11(6), 808–821. https://doi.org/10.1007/s11764-017-0620-5
Gentile, D., Markham, M. J., & Eaton, T. (2018). Patients With Cancer and Social Media: Harness Benefits, Avoid Drawbacks. Journal of Oncology Practice. https://doi.org/10.1200/JOP.18.00367
Grant, J. A., & Hundley, H. (2008). Fighting the Battle or Running the Race? Visual Communication Quarterly, 15(3), 180–195. https://doi.org/10.1080/15551390802235578
Greenhalgh, T., & Peacock, R. (2005). Effectiveness and efficiency of search methods in systematic reviews of complex evidence: Audit of primary sources. BMJ (Clinical Research Ed.), 331(7524), 1064–1065. https://doi.org/10.1136/bmj.38636.593461.68
Hale, B. J., Collins, R., & Kilgo, D. K. (2020). Posting about cancer: Predicting social support in imgur comments. Social Media and Society, 6(4). https://doi.org/10.1177/2056305120965209
Han, C. J., Lee, Y. J., & Demiris, G. (2018). Interventions Using Social Media for Cancer Prevention and Management: A Systematic Review. Cancer Nursing, 41(6), E19–E31. https://doi.org/10.1097/NCC.0000000000000534
Hawkins, A. H. (1999). Reconstructing illness: Studies in pathography (2nd ed). Purdue University Press.
Henderson, A., Miller, C. A., Sutton, A. L., & Guidry, J. P. D. (2021). #TripleNegativeBreastCancer on Instagram. Health Education & Behavior?: The Official Publication of the Society for Public Health Education, 48(5), 567–574. https://doi.org/10.1177/1090198120985450
Hoeck, B., Ledderer, L., & Ploug Hansen, H. (2017). Dealing with cancer: A meta-synthesis of patients’ and relatives’ experiences of participating in psychosocial interventions. European Journal of Cancer Care, 26(6), e12652. https://doi.org/10.1111/ecc.12652
Houts, P. S., Doak, C. C., Doak, L. G., & Loscalzo, M. J. (2006). The role of pictures in improving health communication: A review of research on attention, comprehension, recall, and adherence. Patient Education and Counseling, 61(2), 173–190. https://doi.org/10.1016/j.pec.2005.05.004
Kearney, M. D., Selvan, P., Hauer, M. K., Leader, A. E., & Massey, P. M. (2019). Characterizing HPV Vaccine Sentiments and Content on Instagram. Health Education & Behavior?: The Official Publication of the Society for Public Health Education, 46(2_suppl), 37–48. https://doi.org/10.1177/1090198119859412
Ketonen, V., & Malik, A. (2020). Characterizing vaping posts on instagram by using unsupervised machine learning. International Journal of Medical Informatics, 141, 104223. https://doi.org/10.1016/j.ijmedinf.2020.104223
King, S. (2008). Pink ribbons, Inc.: Breast cancer and the politics of philanthropy. University of Minnesota Press. https://amzn.com/dp/B00IK7WS4G
Koskan, A., Klasko, L., Davis, S. N., Gwede, C. K., Wells, K. J., Kumar, A., Lopez, N., & Meade, C. D. (2014). Use and taxonomy of social media in cancer-related research: A systematic review. American Journal of Public Health, 104(7), e20-37. https://doi.org/10.2105/AJPH.2014.301980
Lorde, A. (1980). The cancer journals. Spinsters/Aunt Lute.
Macdonald, S., Cunningham, Y., Patterson, C., Robb, K., Macleod, U., Anker, T., & Hilton, S. (2018). Mass media and risk factors for cancer: The under-representation of age. BMC Public Health, 18(1), 490. https://doi.org/10.1186/s12889-018-5341-9
McAlpine, H., Joubert, L., Martin-Sanchez, F., Merolli, M., & Drummond, K. J. (2015). A systematic review of types and efficacy of online interventions for cancer patients. Patient Education and Counseling, 98(3), 283–295. https://doi.org/10.1016/j.pec.2014.11.002
Miller, C. A., Guidry, J. P. D., & Fuemmeler, B. F. (2019). Breast Cancer Voices on Pinterest: Raising Awareness or Just an Inspirational Image? Health Education & Behavior?: The Official Publication of the Society for Public Health Education, 46(2_suppl), 49–58. https://doi.org/10.1177/1090198119863774
Miller, C. A., Henderson, A. N., Guidry, J. P. D., McGuire, K. P., & Fuemmeler, B. F. (2020). Pinning Pink: Messages About Hereditary Breast Cancer Risk on Pinterest. Journal of Cancer Education?: The Official Journal of the American Association for Cancer Education. https://doi.org/10.1007/s13187-020-01842-x
Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA Statement. Open Medicine. https://doi.org/null
Moorhead, S. A., Hazlett, D. E., Harrison, L., Carroll, J. K., Irwin, A., & Hoving, C. (2013). A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research, 15(4), e85. https://doi.org/10.2196/jmir.1933
Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo-Wilson, E., McDonald, S., … Moher, D. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. BMJ, 372, n71. https://doi.org/10.1136/bmj.n71
Pailler, M. E., Beaupin, L. K., Brewer-Spritzer, E., Grant, P. C., Depner, R. M., Levy, K., & Tenzek, K. E. (2020). Reaching Adolescent and Young Adult Cancer Patients Through Social Media: Impact of the Photographs of Meaning Program. Journal of Adolescent and Young Adult Oncology, 9(4), 508–513. https://doi.org/10.1089/jayao.2019.0140
Pardal-Refoyo, J. L., & Pardal-Peláez, B. (2020). Anotaciones para estructurar una revisión sistemática. Revista ORL, 11(2), 155–160. https://doi.org/10.14201/orl.22882
Park, S.-E., Tang, L., Bie, B., & Zhi, D. (2019). All pins are not created equal: Communicating skin cancer visually on Pinterest. Translational Behavioral Medicine, 9(2), 336–346. https://doi.org/10.1093/tbm/iby044
Pellino, G., Simillis, C., Qiu, S., Rasheed, S., Mills, S., Warren, O., Kontovounisios, C., & Tekkis, P. P. (2017). Social media and colorectal cancer: A systematic review of available resources. PloS One, 12(8), e0183031. https://doi.org/10.1371/journal.pone.0183031
Petticrew, M., & Roberts, H. (Eds.). (2006). Systematic Reviews in the Social Sciences. Blackwell Publishing Ltd. https://doi.org/10.1002/9780470754887
Pew Research Center. (2019, June 12). Demographics of Social Media Users and Adoption in the United States. Pew Research Center: Internet, Science & Tech. https://www.pewresearch.org/internet/fact-sheet/social-media/
Pyle, D., Perry, A., Lamont-Mills, A., Tehan, G., & Chambers, S. K. (2021). A scoping review of the characteristics and benefits of online prostate cancer communities. Psycho-Oncology, 30(5), 659–668. https://doi.org/10.1002/pon.5618
Reese, S. D., Gandy, Jr., & Grant, A. E. (Eds.). (2001). Prologue—Framing Public Life: A Bridging Model for Media Research. In Framing Public Life (0 ed., pp. 23–48). Routledge. https://doi.org/10.4324/9781410605689-7
Reuter, K., Angyan, P., Le, N., MacLennan, A., Cole, S., Bluthenthal, R. N., Lane, C. J., El-Khoueiry, A. B., & Buchanan, T. A. (2018). Monitoring Twitter conversations for targeted recruitment in cancer trials in Los Angeles county: Protocol for a mixed-methods pilot study. JMIR Research Protocols, 7(9). https://doi.org/10.2196/resprot.9762
Rivera, Y. M., Moran, M. B., Thrul, J., Joshu, C., & Smith, K. C. (2021). When Engagement Leads to Action: Understanding the Impact of Cancer (Mis)information among Latino/a Facebook Users. Health Communication, 1–13. https://doi.org/10.1080/10410236.2021.1950442
Ruco, A., Dossa, F., Tinmouth, J., Llovet, D., Jacobson, J., Kishibe, T., & Baxter, N. (2021). Social media and mhealth technology for cancer screening: Systematic review and meta-analysis. Journal of Medical Internet Research, 23(7). https://doi.org/10.2196/26759
Sandelowski, M., & Barroso, J. (2007). Handbook for synthesizing qualitative research. Springer Publishing Company.
Skrabal Ross, X., Gunn, K. M., Olver, I., Willems, R. A., Lechner, L., Mesters, I., & Bolman, C. A. W. (2020). Online psychosocial interventions for posttreatment cancer survivors: An international evidence review and update. Current Opinion in Supportive and Palliative Care, 14(1), 40–50. https://doi.org/10.1097/SPC.0000000000000478
Sloan, L., & Quan-Haase, A. (2016). The SAGE Handbook of Social Media Research Methods. SAGE Publications Ltd. https://doi.org/10.4135/9781473983847
Sontag, S. (1978). Illness As Metaphor (1st edition). Farrar, Straus and Giroux.
Spence, J. (1986). Putting myself in the picture: A political, personal, and photographic autobiography. Camden Press.
Stage, C. (2018). Networked Cancer: Affect, narrative and measurement. Palgrave Macmillan.
Stage, C. (2019a). Affective measures: Self-measurement and gridding in female cancer patients’ storytelling practices on Instagram. Distinktion: Journal of Social Theory, 20(1), 77–100. https://doi.org/10.1080/1600910X.2019.1580594
Stage, C. (2019b). Cancer narratives on social media as ‘small stories’: An investigation of positioning, supportive (dis)alignment and tellability crises in cancer storytelling on Instagram. Tidsskrift for Forskning i Sygdom Og Samfund, 16(31), Article 31. https://doi.org/10.7146/tfss.v16i31.116969
Suárez-Lledo, V., & Álvarez-Gálvez, J. (2021). Prevalence of Health Misinformation on Social Media: Systematic Review. Journal of Medical Internet Research, 23(1), e17187. https://doi.org/10.2196/17187
Sweeney, E., & Killoran-McKibbin, S. (2016). Selling Pink: Feminizing the Non-Profit Industrial Complex from Ribbons to Lemonaid. Women’s Studies, 45(5), 457–474. https://doi.org/10.1080/00497878.2016.1186492
Tetteh, D. A. (2021). “I just re-evaluated what was beautiful when I went through treatment:” an analysis of Elly Mayday’s ovarian cancer narrative. Feminist Media Studies. https://doi.org/10.1080/14680777.2021.1922482
Thorne, S., Jensen, L., Kearney, M. H., Noblit, G., & Sandelowski, M. (2004). Qualitative metasynthesis: Reflections on methodological orientation and ideological agenda. Qualitative Health Research, 14(10), 1342–1365. https://doi.org/10.1177/1049732304269888
Tifentale, A., & Manovich, L. (2018). Competitive Photography and the Presentation of the Self. In J. Eckel, J. Ruchatz, & S. Wirth (Eds.), Exploring the Selfie: Historical, Theoretical, and Analytical Approaches to Digital Self-Photography (pp. 167–187). Springer International Publishing. https://doi.org/10.1007/978-3-319-57949-8_8
Varela-Rodríguez, M., & Vicente-Mariño, M. (2021a). Imágenes desgarradas: El uso de scrapers en investigación social en Instagram sobre cáncer. Cuadernos.Info, 49, 72–97. https://doi.org/10.7764/cdi.49.27809
Varela-Rodríguez, M., & Vicente-Mariño, M. (2021b). Whose cancer? Visualising the distribution of mentions to cancer sites on instagram. Journal of Visual Communication in Medicine, 1–17. https://doi.org/10.1080/17453054.2021.1964356
Vraga, E. K., Stefanidis, A., Lamprianidis, G., Croitoru, A., Crooks, A. T., Delamater, P. L., Pfoser, D., Radzikowski, J. R., & Jacobsen, K. H. (2018). Cancer and Social Media: A Comparison of Traffic about Breast Cancer, Prostate Cancer, and Other Reproductive Cancers on Twitter and Instagram. Journal of Health Communication, 23(2), 181–189. https://doi.org/10.1080/10810730.2017.1421730
Wilner, T., & Holton, A. (2020). Breast cancer prevention and treatment: Misinformation on pinterest, 2018. American Journal of Public Health, 110, S300–S304. https://doi.org/10.2105/AJPH.2020.305812
Zade, H. A., Habibi, L., Arabtani, T. R., Sarani, E. M., & Farpour, H. R. (2017). Functions of Social Networks in a Community of Cancer Patients: The Case of Instagram. International Journal of Networks and Communications, 7(4), 71–78.